Blog Update · Catch Up · Chronic Illness · Hospital · Mental Health · Personal

Catch Up with Me, Myself and Chronic Illness

Hey Everyone – this week’s blog post is a little different to the norm, in the sense that rather than talk about one topic, I am going to have a catch up with you about lots of bits and pieces going on with me as well as the blog.

Physical Health

So, seeing as this is a blog about my chronic illnesses it only seems right to start with how things have been with my physical health. This is quite simple – the last month has been tough. Hence, perhaps the style of blog post I am writing today. I guess this is the nature of chronic illness yes, but having multiple chronic illnesses in particular. One thing subsides and another thing starts.

You can read my post on the challenges of living with multiple chronic illnesses – my top 5 dilemmas here.

As well as dealing with multiple symptom issues, I have also had a consultant appointment which had been delayed for two years. This revealed that the last letter sent to my GP (two years ago) had contained advice on putting me on a certain medication which never happened. I am still waiting on the medication even now.

I also had to have scan (for a separate issue) and am now awaiting results. Although the scan itself took less than an hour, it wiped out the whole of last week.

Exhaustion is a massive factor at the moment, making every little thing a struggle including being online. I browse things online and try to jump on here and there, but nothing major. I am trying to take each day as it comes – and hey I am here now so swings and roundabouts.

On the plus of not getting online much, I have managed to watch some great telly, and I have a lovely stack of books ready for when exhaustion wants to do one.

Photo by Mikhail Nilov on Pexels.com

Mental Health

Maybe non-surprising to myself, suffering physically has impacted me mentally. There are so many things I had planned to do creatively and that just isn’t happening when feeling so crap.

This then only makes other things happening in my life outside of chronic illness seem so much more difficult to deal with. The rejections sting a bit more, the advice brings me down when normally I would shrug it off. I think that may be my number one bug bare at the moment – places/businesses/charities etc. who claim to help people like me, actually doing the absolute opposite. Maybe, I will go into detail about this more sometime, but not right now instead I give myself permission to feel hard done by, and permission to fume.

Today has been a better day though, today I managed to get outside for the shortest of walks in the sun and today I had a better day symptom wise. Today I am filled with hope again and motivation, which is why I am here making this post.

My blog

In terms of Me, Myself and Chronic Illness blog I feel my fortnightly posting routine is working well for me. It feels enough to keep sharing my thoughts and ideas, yet spaced out enough that I don’t overdo it. If you do want to keep up to date with any new posts make sure to follow me on here or on social media.

It may or may not be obvious, but I have now added a search bar at the side of the post column. You can use this to type in any particular blog post categories you are looking for. I have also added a calendar so you can see what I have written each month.

I have lots of blog post ideas which I hope to share with you over the coming months, a nice mixture of fun based as well as tackling more serious topics, but we will see how things pan out.

In a nutshell

  • I am still enjoying blogging and feel I have better approach to it.
  • I like to describe the basics such as what a search box does (which lets face it was more for my own understanding than anyone else’s).
  • Health wise, I have been bounced around like a pinball machine with appointments here, symptoms there, which has made me feel a bit bleurgh mentally as well as physically.
  • People/places have pissed me off (could I be more vague!?!)
  • Today is a good day, I have eaten a crème egg, had cheese on toast, watched someone win some money on telly, chatted on here – what else do I need?

How has your week/month been? How would you put it in a nutshell?

Sarah xx

Chronic Illness · Facemasks · Invisible Disability · Invisible Illness · Pandemic

Why It Is My Right to Wear a Facemask – and Why It Isn’t Your Right to Question That

Hi Everyone – today’s post is an article I wrote a few months ago when certain restrictions were first eased in the UK. The article was supposed to be used for something else, but never was and it has since been sat doing nothing. With this said, I feel now that we are ‘Living with Covid,’ the issues I wrote about in this piece are still very much a factor for me personally and therefore I wanted to share them on the blog. Please note as this was originally written a few months ago, some of these references may be slightly out timescale wise.

It has been nearly a whole two years since the pandemic hit the UK with most of that time spent not being ‘normal’ – what ever normal means these days. The pandemic has had a major impact the world over for various reasons including on a personal, financial, social, business and most importantly health level. Yet, here in the UK we have seen restrictions lift as we came out of lockdown and in more recent times have been told to learn to live with Covid. Gone is the need to social distance or wear a facemask in certain situations, in fact it was advised to be a personal choice.

A personal choice which has thrilled many people who believe they have suffered enough and cannot endure anymore. A decision that regardless of your own beliefs has had to accepted as freedom of rights, individual choices and personal judgements. But what about the rights, choices, and judgements of the people who still choose to wear a mask and/or social distance, what and where are their rights?

I live with multiple chronic illnesses, one of which involves my immune system. I have been self-isolating since the pandemic started. The only time I have left my home is to go on short walks on the same route every few days (or when symptoms allow), and for medical appointments. I was lucky enough to be vaccinated, but the personal choice for my household and I is to wear a facemask to protect ourselves and others who may be vulnerable around us.

Going on the rationale of the rights to be unmasked, surely to wear a mask and social distance is our personal choice, our freedom of rights and our decision based on our experiences and individual beliefs – so why do people take such umbrage with that?

Photo by RODNAE Productions on Pexels.com

In the last few weeks members of my household have been challenged about wearing a facemask on no less than six occasions. These interactions have happened in various ways from subtle quips such as laughter and eye rolling to more hate driven encounters where people have been confrontational and aggressive. Let that sink in for a moment – challenged for wearing a mask. Questioned about why you want to protect yourself and others around you, like you should be ashamed to. Questioned by strangers who don’t know you from Adam, yet feel like they can pass judgement on your choice, all whilst you cannot dare to question theirs.

Those people still choosing to wear a mask have absolutely no effect on your day whatsoever. It doesn’t stop you doing anything or interfere with your plans or your so-called rights, so why does it affect you so badly? To a point where you want to be rude, dismissive, mocking and hostile – why does it get under your skin? Maybe because we are portraying that freedom of the public is actually only about the freedom of the unmasked, and when someone doesn’t hold the same mentality then it becomes a problem.

When you look at a person in a mask you have absolutely no idea what their reasoning is behind their choice, or what type of life they are living. To look at me I look like any other person you would encounter in the street, quite simply I don’t look ill. You cannot see the endless symptoms I am subjected to, or the internal battle my body is fighting. You don’t know why protection is so important to my health. In the same way you don’t know of the mental health struggle a person may be harbouring from having a pandemic rip through their life and therefore finds wearing a mask is the comfort blanket they so desperately need. A person whose job is to look after after the vulnerable and therefore who needs to be considering this when out and about. A vulnerable person who has no support or appropriate guidance from the government, and who are immunocompromised unable to create antibodies against a deadly virus. Nobody knows anybody else’s story, and nobody has the right to ask. Nobody is obligated to explain themselves; nobody should have to.

Quite simply if I have to accept your right to be ‘free,’ then quite frankly you have to accept my right to stay well and to protect my immunocompromised/chronically ill/disabled communities. That’s the problem with a pandemic you see it requires you to look beyond yourself. It means being able to value strangers, to be kind, to show support in situations that may not affect you directly, and to be respectful of all. The problem being some people are only capable of these things when it affects them directly, they show solidarity and bang on their pans until it is no longer their concern. Then it bores them, you bore them, so you find yourself standing alone.

The vulnerable communities and their families have to endure so much over these last few years, to be subjected to this antagonistic behaviour when people have ultimately got what they wanted shouldn’t be another thing to contend with. Freedom isn’t about a select few, it is about everyone. Anyone can become vulnerable at any point in their lives – so how would you feel if that was you, or someone you loved, and the response you received was to stay out of society or be ridiculed for the one thing that enables you to go outside.

I am not asking people to wear a mask because clearly, we are beyond that now; I am simply asking you to respect the people who do.

Sarah xx