Blog Update · Catch Up · Chronic Illness · Hospital · Mental Health · Personal

Catch Up with Me, Myself and Chronic Illness

Hey Everyone – this week’s blog post is a little different to the norm, in the sense that rather than talk about one topic, I am going to have a catch up with you about lots of bits and pieces going on with me as well as the blog.

Physical Health

So, seeing as this is a blog about my chronic illnesses it only seems right to start with how things have been with my physical health. This is quite simple – the last month has been tough. Hence, perhaps the style of blog post I am writing today. I guess this is the nature of chronic illness yes, but having multiple chronic illnesses in particular. One thing subsides and another thing starts.

You can read my post on the challenges of living with multiple chronic illnesses – my top 5 dilemmas here.

As well as dealing with multiple symptom issues, I have also had a consultant appointment which had been delayed for two years. This revealed that the last letter sent to my GP (two years ago) had contained advice on putting me on a certain medication which never happened. I am still waiting on the medication even now.

I also had to have scan (for a separate issue) and am now awaiting results. Although the scan itself took less than an hour, it wiped out the whole of last week.

Exhaustion is a massive factor at the moment, making every little thing a struggle including being online. I browse things online and try to jump on here and there, but nothing major. I am trying to take each day as it comes – and hey I am here now so swings and roundabouts.

On the plus of not getting online much, I have managed to watch some great telly, and I have a lovely stack of books ready for when exhaustion wants to do one.

Photo by Mikhail Nilov on Pexels.com

Mental Health

Maybe non-surprising to myself, suffering physically has impacted me mentally. There are so many things I had planned to do creatively and that just isn’t happening when feeling so crap.

This then only makes other things happening in my life outside of chronic illness seem so much more difficult to deal with. The rejections sting a bit more, the advice brings me down when normally I would shrug it off. I think that may be my number one bug bare at the moment – places/businesses/charities etc. who claim to help people like me, actually doing the absolute opposite. Maybe, I will go into detail about this more sometime, but not right now instead I give myself permission to feel hard done by, and permission to fume.

Today has been a better day though, today I managed to get outside for the shortest of walks in the sun and today I had a better day symptom wise. Today I am filled with hope again and motivation, which is why I am here making this post.

My blog

In terms of Me, Myself and Chronic Illness blog I feel my fortnightly posting routine is working well for me. It feels enough to keep sharing my thoughts and ideas, yet spaced out enough that I don’t overdo it. If you do want to keep up to date with any new posts make sure to follow me on here or on social media.

It may or may not be obvious, but I have now added a search bar at the side of the post column. You can use this to type in any particular blog post categories you are looking for. I have also added a calendar so you can see what I have written each month.

I have lots of blog post ideas which I hope to share with you over the coming months, a nice mixture of fun based as well as tackling more serious topics, but we will see how things pan out.

In a nutshell

  • I am still enjoying blogging and feel I have better approach to it.
  • I like to describe the basics such as what a search box does (which lets face it was more for my own understanding than anyone else’s).
  • Health wise, I have been bounced around like a pinball machine with appointments here, symptoms there, which has made me feel a bit bleurgh mentally as well as physically.
  • People/places have pissed me off (could I be more vague!?!)
  • Today is a good day, I have eaten a crème egg, had cheese on toast, watched someone win some money on telly, chatted on here – what else do I need?

How has your week/month been? How would you put it in a nutshell?

Sarah xx

Blog Update · Chronic Illness · Mental Health · Personal · Stress

Losing My Blogging Mojo – and how I am working to get it back

It’s been a few weeks now since I sat down at the computer and opened up my blog. Not because I have been particularly busy or because anything major has been going on, the reality is I just haven’t wanted to. Sounds a bit to the point I know, but I have always wanted this blog to be about honesty so here is mine.

Maybe I should be a bit more specific I haven’t wanted to, not because I am bored with the blog or anything like that. I have just felt like I physically and mentally couldn’t face creating a post. That my motivation had disappeared.

I think this was a result of a combination of things that seemed to come together at once therefore maybe hitting me harder than if each one had occurred separately and I lost myself for a while. Lost my focus, my vision and what was making me happy.

Firstly, as my last blog explained I went to hospital for my first face-to-face appointment in 18 months give or take – more than that it was my first proper trip out of my home for 18 months too. Of course this had an impact on my body in the days that followed (although thinking back I wonder if this impacted me for longer than I even realised). Secondly, I received another two diagnoses and whilst this hasn’t affected me emotionally, I think there was this internal mental battle of ‘when is this going to end’ to contend with. Thirdly, I had an extreme flare-up of one of my conditions that drained my whole being, physically, mentally, emotionally and in all ways possible. Finally, my writing bits received a barrage of rejections, let’s say ‘inputs’, people taking advantage, all wrapped up in a lot of me giving and not getting anything back, all of which couldn’t have come at a worse time. Reading this back it sounds a little cryptic, but I’m planning on writing a post on this specifically next time.

Having all these things hit me practically at once, I think I got inside my own head and the physical and mental exhaustion I would normally feel anyway extended into emotional exhaustion too. I found myself getting into the mindset of what is the point, why am I bothering? What is any of this really achieving? I had/have all these blogging ideas and things I want to share and write about, but my mind couldn’t find the words, my body couldn’t find the strength to sit and get on with it. It was in this moment I thought that maybe I had lost my ability to express myself, my ability to blog and maybe this was it.

Photo by Andrea Piacquadio on Pexels.com

We are a few weeks down the line and the fog in my brain has started to lift and I have started to see more clearly what the real issues are. The issue isn’t blogging because I love this blog and I love the content I have created for it. The issue is me not practising what I preach and not giving myself a break when the inevitable flare-up occurs. I forget how much living with five (plus two more) chronic conditions takes it out of me and even when I am in a flare I battle to carry on, no matter how much my body is saying no. As a result there is only one way I am heading – for an almighty crash!

Now more than ever before this is something I need to work on – especially as we have now entered the period of the year that is always the most difficult for me – Autumn. The change in light has an horrific impact on my health in general including my energy levels and ability to function. Therefore I know flares are coming and I need to learn to balance things sooner rather than later.

But maybe more than anything the issue is me putting myself at the end of the queue when it comes to care. Helping others, endless to-do lists, people’s opinions, not letting people who show no interest in my life down, this blog – all come before me and my health.

So what am I going to do about it?

  • Take the time to prep for the Autumn/Winter months by revisiting my own blog post here – and take my own advice!
  • Purchase a new SAD lamp/light to get that much needed light which will help me through the darker/colder months and ultimately my motivation
  • Cut the crap from my life and all the things that don’t make me truly happy
  • Get back blogging no matter how small – Blogging is such an important creative outlet for me and the benefits it brings to my mental health and my ability to accept my conditions are immense. They say to beat writers block and motivational setbacks, you just need to write, sounds silly right? But doing this blog post today in this manner has really helped.
  • Give myself adequate time away from my blog and everything related to it – To truly put myself first, I need to have days/weeks where I completely disengage from my blog and social media. I am actually somebody who is rarely on social media, but even so I try to pop on it at some point everyday – this is really not helpful! Taking a step away on a regular basis will allow me to focus on what really matters.
  • Go with the flow – A few months ago I talked about having a structure with my blog which consisted of having a week off to focus on other writing bits and pieces. Up until a few weeks ago this was working perfectly, and I would love to say I am going to go back to that, and maybe I will. However at this moment in time whilst I am still trying to get my mojo back I don’t want to put any pressure on myself, instead I want to blog when it feels right for me, however often that may or may not be.

Whilst this blog post may seem a little jumbled, (it is a reflection of my jumbled mind), I hope it has shown the honest side of blogging with chronic illness. There are times when you are so motivated all you want to do is write, write, write, like there isn’t enough space to get your thoughts down. Other times external factors – predominately health related – make you stop and re-evaluate everything you were striving for. It doesn’t mean it’s over, it means you just need to stop and take a breather from time to time.

Sarah xx

Blog Update · Chronic Illness · Personal

Blog Update

Hi Everyone – So this blog post is a little late considering I said I would do it after the blog’s birthday post – sorry for that. Awareness month came along and I thought it would be good to do a couple of posts for that, but anyway here we are..

For anyone who read my blog birthday post, I said I would discuss how I would be structuring my blog posts going forward. I have given this a lot of thought because I have always been keen for my content to be meaningful to not only people who read it, but to me too. I am brimming with ideas, but feel I need more of a structure. So from June onwards I have decided to do the following:

  • Have the first week of each month off from the blog to focus on other writing bits and pieces – I have been doing this for a little while now and I think it works better than me trying to write about multiple things at the same time and risk repeating crap!
  • For the rest of the month do 3/4 blog posts (one a week – like normal) depending on how many weeks in the month there are.

Of these blog posts I would like to do:

  • 1 post on mental health
  • 1 post on chronic illness/condition specific
  • 1 or 2 posts on a particular topic obviously related to chronic illness e.g. work, hobbies etc. etc. I would be really keen to hear if there are any specific topics anybody would like to request. You can find me on the contact tab above if you would like to make any requests. If not no worries, I have plenty of ideas.
Photo by Pixabay on Pexels.com

On a slightly separate note, I recently wrote (I say recently it was finished several months ago and it took me an age to do!) a short fiction piece on chronic illness which I tried submitting for something else, who didn’t believe it was for their audience. I know, I know chronic illness is such a boring theme right? Anyway, I want to do something with it and not have it sat in a folder so if anyone knows of anywhere I could send it please let me know. If not, I was considering sharing it on here – maybe I could put it under a tab or something so it doesn’t get mixed up with all the other content – because although it is a short story it is an extended short story!

So this is the plan – for now. Because let’s be honest, things may go out of the window depending on life. My health may mean scaling back, or certain things may take my fancy one week and not another. But, this is my current plan.

Thank you for taking the time to read my post today – let’s face it this was more for me than for you and was a chance to get my thoughts straight. Even so if you got to the end of this post – thank you for your support!

According to my plan I have next week off, so see you the week after.

Sarah xx