Well what can I say other than 2020 has been a year I think none of us will forget. I don’t want to make this a post about the pandemic because we see that everywhere, but I would like to talk about how 2020 has changed for me on a personal level and the chronic illness community in general.
Chronic Illness Community
I think if there is anything to take away from this year it is the notion that lockdown has enabled other people to see what life is like for the chronic illness community on a daily basis. From not being able to get out of the house, to having plans cancelled, limited social interactions and a sense of a never-ending conclusion – ‘healthy’ people have had a taster of what our lives are like.
I would like to say moving forward people will be more mindful when it comes to the lives of the chronically ill and disabled, but like with anything in life there are no guarantees. I think there are definitely a ratio of people who are now more understanding and thoughtful to the reality of chronic illness, yet I also believe there are a huge number who still don’t necessarily care or are bothered because ultimately it isn’t them.
NICE Guidelines
For my fellow ME/CFS sufferers here in the UK, there was some good news in the form of the NICE guidelines stating that graded exercise therapy (GET) should not be offered for the treatment of ME/CFS. This is a welcome relief for many sufferers who have often been advised and in some cases pushed to up their exercise levels with the idea it would help when in fact it was only make things worse.
My Personal Health
My health has been very up and down this year with me receiving my fifth diagnosis in the form of Undifferentiated Connective Tissue Disease (UCTD) several months ago. This led me onto the track of trialling medication which has had its pros and cons. I am still ill most days and at times I can’t even tell which condition is causing which symptom anymore, I have so many.
This year I also experienced a collapse which led to a visit from the paramedics and after some not great blood test results has led to another referral to another clinic for yet another second opinion. This is scheduled for the start of 2021 which was a slight shock because my consultant had said they didn’t need to see again for 12 months, but after my collapse that got changed to three.
It’s funny really when chronic illness has been a part of your life for so long, you are no longer phased by another appointment. Once upon a time these appointments would scare me, but now I have accepted I am ill I take it a lot more in my stride because whilst my physical health is still taking a battering, my mental health has improved.

Me, Myself and Chronic Illness Blog
I think what has been helping my mental health and has allowed me to take things in my stride is this right here – my blog and all you wonderful people who have ever read one of my posts. I can’t believe I started my blog in April this year, with my first post going live at the beginning of May. Since then I have done 51 posts covering (I hope) mainly topics surrounding chronic illness and mental health.
I have many ideas lined up for the blog going into 2021 which I hope will be useful and interesting to you all. However I am always open to any topics or ideas anybody has so feel free to leave me a message in the comment section or contact me on Twitter or Facebook and I will do my best to follow up on them.
I want to finish up by saying that this will more than likely be my last post for 2020 as I will be taking a break for Christmas. I want to thank you all for your support and having you take the time to read my blog means the world to me. Here’s to a Happy New Year for us all.
Lots of Love
Sarah xx




