Chronic Illness · Mental Health · Personal

Review of the Year 2020

Well what can I say other than 2020 has been a year I think none of us will forget. I don’t want to make this a post about the pandemic because we see that everywhere, but I would like to talk about how 2020 has changed for me on a personal level and the chronic illness community in general.

Chronic Illness Community

I think if there is anything to take away from this year it is the notion that lockdown has enabled other people to see what life is like for the chronic illness community on a daily basis. From not being able to get out of the house, to having plans cancelled, limited social interactions and a sense of a never-ending conclusion – ‘healthy’ people have had a taster of what our lives are like.

I would like to say moving forward people will be more mindful when it comes to the lives of the chronically ill and disabled, but like with anything in life there are no guarantees. I think there are definitely a ratio of people who are now more understanding and thoughtful to the reality of chronic illness, yet I also believe there are a huge number who still don’t necessarily care or are bothered because ultimately it isn’t them.

NICE Guidelines

For my fellow ME/CFS sufferers here in the UK, there was some good news in the form of the NICE guidelines stating that graded exercise therapy (GET) should not be offered for the treatment of ME/CFS. This is a welcome relief for many sufferers who have often been advised and in some cases pushed to up their exercise levels with the idea it would help when in fact it was only make things worse.

My Personal Health

My health has been very up and down this year with me receiving my fifth diagnosis in the form of Undifferentiated Connective Tissue Disease (UCTD) several months ago. This led me onto the track of trialling medication which has had its pros and cons. I am still ill most days and at times I can’t even tell which condition is causing which symptom anymore, I have so many.

This year I also experienced a collapse which led to a visit from the paramedics and after some not great blood test results has led to another referral to another clinic for yet another second opinion. This is scheduled for the start of 2021 which was a slight shock because my consultant had said they didn’t need to see again for 12 months, but after my collapse that got changed to three.

It’s funny really when chronic illness has been a part of your life for so long, you are no longer phased by another appointment. Once upon a time these appointments would scare me, but now I have accepted I am ill I take it a lot more in my stride because whilst my physical health is still taking a battering, my mental health has improved.

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Me, Myself and Chronic Illness Blog

I think what has been helping my mental health and has allowed me to take things in my stride is this right here – my blog and all you wonderful people who have ever read one of my posts. I can’t believe I started my blog in April this year, with my first post going live at the beginning of May. Since then I have done 51 posts covering (I hope) mainly topics surrounding chronic illness and mental health.

I have many ideas lined up for the blog going into 2021 which I hope will be useful and interesting to you all. However I am always open to any topics or ideas anybody has so feel free to leave me a message in the comment section or contact me on Twitter or Facebook and I will do my best to follow up on them.

I want to finish up by saying that this will more than likely be my last post for 2020 as I will be taking a break for Christmas. I want to thank you all for your support and having you take the time to read my blog means the world to me. Here’s to a Happy New Year for us all.

Lots of Love

Sarah xx

Activities · Christmas · Chronic Illness

Top 5 Christmas Activities for Chronic Illness Warriors

Seeing as people seemed to enjoy my post back in the summer about the top 5 summer activities for chronic illness warriors, I have decided to do a Christmas version.

Christmas is traditionally seen as a time of year which is full of fun with never ending events and things to do. However when you are chronically ill some of these activities may not be appropriate inline with your body’s needs and your energy levels.

As we all know this year is going to be a very different year anyway, but I would like to share with you my top activities at Christmas when you have chronic illnesses.

1 – Feast on festive treats

One of the best things to do at Christmas time is snuggle up on the sofa with a big Christmas sweater and enjoy a nice mug of hot chocolate (marshmallows and cream are hard to resist!). Perfect for a chronic illness warrior because you are not only getting a festive treat, but you can relax on the sofa whilst doing so and stay true to your normal attire of baggy clothes for comfort just with a funky festive flare. Obviously this is allergy and diet dependent, so you may need to make adjustments where needed, but this time of year there are many Xmas foods you can divulge in.

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2 – Watch Xmas films and/or tv

Watching films and/or television is a great chronic illness activity as it allows you to chill out and relax on the sofa or in bed without much physical activity. Christmas films and shows are a great form of escapism which in turn can give you a focus on something other than feeling unwell. Remember you can adapt this activity to your individual needs by choosing the length of film/programme you watch and deciding if this is an activity you would like to do alone or with others. For ideas on the best Christmas films to watch you can check out my blog post on my top Christmas film picks here.

3 – Sale shopping

I did debate a bit about whether to add this to the list because I am aware shopping (physical or online) can be very energy draining especially on a time line. I for one find shopping an activity which can wipe me out for days on end even if it is done through my computer. However if like me you find being chronically ill greatly effects your finances then finding bargains in the sale can be a lifeline on items you desperately need, but cannot normally afford. If doing this yourself is too difficult maybe you could put a list together of things you particularly need and ask someone else to do the investigating for you!

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4 – Give back to charity

When you live with chronic illness a lot of your time can be taken up with having to think about your own needs (and how most of the time you are not listening to them), but Christmas is that time of year when you can be thankful for what you do have. Giving to charity is a wonderful way to allow yourself to take a moment and reflect on other people who are in the same boat as you (or worse) and make donations to the charities who are a lifeline to people in their moment of need. Remember it is not about the amount, but the thought and your donations do not have to be financial, they can be time or task related instead.

5 – Look to next year

As I have already mentioned Christmas is always a reflective time of year. The time of year to think about the year just gone and the new year ahead. Living with chronic illnesses this is maybe more poignant than it is to most others. Going into a new year unfortunately is not going to cure us or in most cases make us any better, yet that doesn’t mean you shouldn’t have hope and goals for the future. I was always somebody who would make new years resolutions and beat myself up for not being able to achieve them when really they were always going to be unachievable with my conditions. Instead of making new years resolutions why not highlight your achievements for the year and remind yourself of how amazing you are, and how you can take these skills with you into the new year.

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So here you have it – my top Christmas activities for chronic illness warriors. Hopefully you find these suggestions helpful, but remember there is no right or wrong. Your Christmas should be spent in your way, so enjoy!

Activities · Christmas · Films

Christmas Films – My Top Picks

Following on from my top Halloween film picks, I couldn’t resist sharing my top films for Christmas. Christmas can be a very difficult time for people with chronic illness due to the various activities, communications and heightened visual and audial disturbances, but watching films can be a great activity to do with others or alone. It is just a case of picking the right one so let’s get started….

Let’s get right to the crunch and dive straight in with proper xmassy films: The Santa Clause and Elf.

The Santa Clause is one of my most favourite Christmas films of all time. Starring Tim Allen the movie is about a father who transforms into Santa. This is a great watch if you enjoy seeing the north pole in all its glory and love the magic of believing. Keep a look out for the various elves in particular Judy who makes the perfect hot cocoa.

Elf starring Will Ferrell is a must see for Christmas fanatics. The movie is centred around the story of Buddy – a human who was raised by elves – who after discovering he is not an actual elf goes on a journey to New York City to find his biological father. This film is filled with festive cheer as Buddy explores this new world with an elf mentality. – Son of a Nutcracker!

Ok so I know not everyone loves a Christmassy film at Christmas so let’s take a look at my top non-Christmassy films that are considered Christmas films – if you catch my drift: Bridget Jones’s Diary and Home Alone.

Bridget Jones’s Diary is a romantic comedy that definitely resonates with me. Starting at a Christmas party with that disastrous Christmas jumper and Bridget trying to combat single life. That soon changes however when she has two men vying for her affection in the form of Daniel Cleaver and Mark Darcy. The movie has some great scenes and funny moments especially in the form of Bridget’s friends alongside a very catchy soundtrack.

Home Alone is the ultimate Christmas comedy about a young boy being left you guessed it – home alone. I think most people probably know the story by now and if you don’t I really recommend you watch it. There are some great performances especially by a young Macaulay Culkin and is definitely a great pick if you want a few laughs over the festive period.

So we have the Christmassy and the not so Christmassy films, but now I want to share some shorter stories for my fellow chronic illness warriors who may find viewing longer films too much on their bodies. I give you Raymond Briggs’s The Snowman and Father Christmas.

The Snowman – This Raymond Briggs’s classic is a visual masterpiece and so beautifully crafted. It is also the story that brought us Walking in the Air and a lot of flying snowmen. For such a short story it sparks the magic and excitement of Christmas as well as a slight tearjerker at the end (I won’t spoil it for you).

Father Christmas – Again this Raymond Briggs’s classic has the same visual beauty, but this time follows Father Christmas on his year from one Christmas eve to the next. This has a funnier element to it then The Snowman, with Father Christmas getting up to all sorts of adventures.

For the eagle-eyed viewers amongst us you may notice that both short stories give cameos to each other with The Snowman featuring in Father Christmas and Father Christmas featuring in The Snowman, so it is a lovely nod to each story. If you want something short that gets you in the festive mood I strongly recommend this picks to make you smile.

Here we have it my top picks for Christmas – of course there are many others, but I wanted to keep it simple. So what will you be watching this year?